Winter Wellness: Tips for Managing Your Health in Cold WeatherWinter is a season that brings its own set of joys and challenges. For individuals living with rare diseases and caregivers, the colder…Jan 9Jan 9
Diversity in Rare Disease Clinical Research: Building A Path ForwardIn clinical research, the diversity of participants has long been overlooked, especially in rare diseases. The reality is that many…Nov 15, 2024Nov 15, 2024
Health and Hope: The Legacy of Black Hospitals in AmericaOperating room photo from Frederick Douglass Memorial Hospital Annual Report, ca. 1900. National Library of Medicine.Oct 30, 2024Oct 30, 2024
Health Literacy: Your Superpower in Navigating Rare Disease CareNavigating the healthcare system can often feel like a complex maze — especially for rare disease families, where every twist and turn can…Oct 4, 2024Oct 4, 2024
Why Me, God? — A Mother’s Journey as a Caregiver to Children with Autism and HemophiliaPhoto by Obed Esquivel-Pickett on UnsplashAug 16, 2024Aug 16, 2024
Balancing Act: Mental Wellness for Rare Disease CaregiversPhoto by Kaysha on UnsplashJul 22, 2024Jul 22, 2024
Navigating Prenatal Genetic Testing: Empowerment to Make Informed Health DecisionsPhoto by Dexswaggerboy on UnsplashJun 11, 2024Jun 11, 2024
Honoring the Legacy: A Brief History of Black Nurses in the United StatesPhoto by National Library of Medicine on UnsplashMay 1, 2024May 1, 2024
Harnessing AI for Rare Disease: Advancing Health EquityIn healthcare, Artificial Intelligence (AI) stands as a transformative force, offering unprecedented opportunities to advance disease…Apr 2, 2024Apr 2, 2024
