Reflecting on Black History Month: Lessons, Growth, and the Road AheadAs we close out Black History Month, we at Rare Melanin take this moment to reflect on the power of history, the strength of our community…Feb 25Feb 25
Winter Wellness: Tips for Managing Your Health in Cold WeatherWinter is a season that brings its own set of joys and challenges. For individuals living with rare diseases and caregivers, the colder…Jan 9Jan 9
Diversity in Rare Disease Clinical Research: Building A Path ForwardIn clinical research, the diversity of participants has long been overlooked, especially in rare diseases. The reality is that many…Nov 15, 2024Nov 15, 2024
Health and Hope: The Legacy of Black Hospitals in AmericaOperating room photo from Frederick Douglass Memorial Hospital Annual Report, ca. 1900. National Library of Medicine.Oct 30, 2024Oct 30, 2024
Health Literacy: Your Superpower in Navigating Rare Disease CareNavigating the healthcare system can often feel like a complex maze — especially for rare disease families, where every twist and turn can…Oct 4, 2024Oct 4, 2024
Why Me, God? — A Mother’s Journey as a Caregiver to Children with Autism and HemophiliaPhoto by Obed Esquivel-Pickett on UnsplashAug 16, 2024Aug 16, 2024
Balancing Act: Mental Wellness for Rare Disease CaregiversPhoto by Kaysha on UnsplashJul 22, 2024Jul 22, 2024
Navigating Prenatal Genetic Testing: Empowerment to Make Informed Health DecisionsPhoto by Dexswaggerboy on UnsplashJun 11, 2024Jun 11, 2024
Honoring the Legacy: A Brief History of Black Nurses in the United StatesPhoto by National Library of Medicine on UnsplashMay 1, 2024May 1, 2024
Harnessing AI for Rare Disease: Advancing Health EquityIn healthcare, Artificial Intelligence (AI) stands as a transformative force, offering unprecedented opportunities to advance disease…Apr 2, 2024Apr 2, 2024
